Man with rare genetic disease vows to make most of life through travel

Focus Taiwan
Date: 2017/07/23
By: Chang Ming-hsuan and Ko Lin

Taipei, July 23 (CNA) Life could not have been more cruel to Yu Wen-han (尤文瀚), but

the 27 year-old patient of Von Hippel-Lindau (VHL), a rare genetic disorder, said the incurable disease has not stopped him from making the most of his life by traveling the world.

Yu, who has toured Taiwan on a motorcycle and traveled from Australia to Japan and countries in Southeast Asia, said he would like to encourage young people to never give up on their dreams and be confident in what they do.

“My mother suffered from a very rare disease called Von Hippel-Lindau,” he said, recalling that he was only 13 when she died from multiple organ failures.

VHL is a cancer syndrome where blood vessel tumors grow and continue to grow throughout various parts of the body, including the brain, spinal cord, kidney, pancreas, inner ear, adrenal glands and eyes.    [FULL  STORY]

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